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Archive for July, 2013

July 11, 2013 – Today is Jim’s one-year Vadiversary.  Can you believe he received his LVAD a year ago today?  I can’t believe it’s been a year already.

In my last post I was complaining because Jim hadn’t asked any questions at his Clinic appointment so at his last LVAD clinic visit I asked him to at least see what his status is on the List.

He was told that he is one of two people to be transplanted.

EEEEK!

While they were quick to remind us that the List is like an accordion and is constantly growing / shrinking, it was scary to hear that.

When he was originally placed on the heart transplant list (a little over a year ago), they said it would be at least a year, and he was one of 20 people.  So they were right on.

Here we are a year later and he’s one of two.

Hearing this stressed us out a tad.  When it comes to dwelling on the surgery itself, we generally don’t allow negativity of any kind in our house.  But sometimes it has a way of just showing up.  I ate my face off for about two weeks after hearing that but have since regrouped.

How was your 4th of July Holiday?

We both took a week off and really tried to relax.  Spent most days in my bathing suit and even though I sometimes took two showers a day, never once did I pick up a hairdryer or curling iron!!  Poor Jim cannot use the pool and it was too hot outside for him.  We had a couple of issues when we tried to go out a couple of times.  Once we decided to go for a walk around one of the local malls, but it was too hot inside the mall, and we had to leave abruptly.  Another time we tried to go to Trader Joes, but Jim almost passed out in the parking lot.  I had to help him back to the car quickly cuz I really didn’t want him passing out in the parking lot.  Passing out is bad enough, but when you’re in the middle of a steaming hot parking lot – ugh!  His potassium was probably too low or he may have been a bit dehydrated.  We got him into some A/C, got him some water and food and he felt much better.  Stubborn.  I told him I should have dropped him off at the door rather than have him walk through the parking lot but I understand – he says he wants the exercise.  I think we both may have underestimated the role heat plays in this game though.  It was extremely hot last week.

For summer reading, I read Mrs. Lincoln’s Dressmaker by Jennifer Chiaverini and thoroughly enjoyed it.  Next will be reading Dan Brown’s Inferno.

Short list this year…

Did some sewing but nothing crazy.  Most of the wedding quilt is put together.

And spread out on the dining room table…

Thanks for your advice, Monique!!  Appreciate it, and you were right…  My idea would have been “a huge pain in the butt”.  LOL!!

There may be some extra seams here and there where I had to fill in between blocks, but I think it still looks nice…  It won’t win any awards, that’s for sure…  I didn’t plan it very well.  When I copied the pictures to fabric I copied pictures of all sizes and orientations.  I should have squared them all up to the same size.

I think I’m one of those people that should always ALWAYS follow a pattern.

Surprisingly, I didn’t do a lot of cooking…  I usually like to use time off to try different recipes I’ve found.  I made a Poblano Pepper and Corn lasagna, and we pretty much lived off of that for the week.  It was delicious, but felt it was missing something.

Besides the salt of course…  I think I would have liked more sauce.

We also lived on fruit…

Fruit.

Fruit and yogurt.

Fruit, yogurt and honey…

Oh – and Tomatoes on Toast…  Simple but this is the best!!

Now I’m bitter because I’m not a billionaire and am back at work and want to be home by the pool with another good book and an iced coffee.

Jim really has been feeling pretty good.  Just the typical fatigue / can’t sleep at night.  He has been having issues with something like a restless leg syndrome, and he mentioned this at his recent LVAD clinic appointment.  Just as he’s about to fall asleep (and sometimes when he’s sleeping), his lower body twitches.

Sometimes rather violently. 

He describes it in Martial Arts terms…  “It feels like an energy building up in my lower body that suddenly releases out through my feet.”

Did you know that he was inducted into the Martial Arts Hall of Fame??

His team believes it has to do with his infection medication, which he does happen to take early evening.  So Jim being the brilliant person he is, decided to take it in the morning instead of after dinner and we have seen an improvement.  It does still happen, but to a much lesser degree.  Sometimes I notice it happens while he’s sleeping but it doesn’t seem to wake him.

In my earlier post I mentioned that they were watching his kidney functions.  We are still taking a wait and see attitude on this one.  They indicated that while they are watching his numbers we are nowhere near the point where we need to make changes…

I think that’s it for now.  Anyone have a crystal ball?

Lots of Love!!

Cheryl

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